Category: Epilepsy

At least I have a diagnosis!

Regular readers will be familiar with my frequent complaints about poor sleep, insomnia, and general sleepiness. Well today, I finally got to do something about it. Despite my sleep patterns being all screwed up by my epilepsy, anti-epileptic medication and the stress that comes with both, I knew myself that my sleep was far from ...

Dear Epilepsy, fuck you very much

I normally try to keep quite upbeat when it comes to living with epilepsy. I reflect on how I basically have it very good, how epilepsy doesn't impact my life too much and how things could be so much worse. But today... Today made it very hard to think positively or optimistically about epilepsy in ...

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Royal Parks Half – here we go!

I'm sitting in my kitchen, sipping a coffee and preparing to get dressed. At 0900, I'll start the Royal Parks half-marathon and run 13 miles / 21km around London's stunning parks. All in aid of Epilepsy Action. Training has gone well and I've been very pleased with my longer runs, both in terms of pace ...

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Hey brain: why you no work?

It's Saturday afternoon and I've had three (that I'm aware of) epileptic seizures this week. Maybe more on the horizon. My overwhelming reaction is one of disappointment. Quickly followed by boredom. I had a couple of nighttime seizures earlier in the week, which left me feeling like I had the mother of all hangovers each ...

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Royal Parks Half-marathon: Taking it up a notch

I ran 9km over lunch yesterday, in the wonderful London sun. And despite waking up to glorious sun this morning, it seems to have evaporated and gone elsewhere. Nonetheless, I topped up my (very depleted) caffeine levels and hit the streets. (As an aside, my running is fuelled by caffeine, not enthusiasm. Running sans cafe ...

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On the run…again

We're roughly two months out from his year's Royal Park's Half-marathon and I'm back into training with gusto. I ran almost every morning when in South Beach last month and, while it was far too hot and humid, it was great to get a few kms under my belt. Also a great way to take in South ...

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Heaving breathing, flashing lights

So I had my sleep-deprived EEG this morning. I fell asleep after about 1am (after staying awake by catching up on the massive backlog of comics I haven't read) and my alarm went off at 5:30am. Groan. I freely admit it was tough to get myself out of bed. Harder still to avoid the coffee ...

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Mission impossible

  I'm going into hospital for a sleep-deprived EEG test tomorrow morning. I've had a few EEGs on my long journey through the world of epilepsy, including being monitored all night while I slept.   Tomorrow, I need to go in having had about half the sleep I normally get. Oh. The letter I received ...

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The fragile body

Last weekend, I hit the streets of London hard. Literally. Falling while out running, I took a lump out of my right elbow, badly hurt my right root and knee and (it turns out) twisted my ankle in the process. This wouldn't have been so bad - I'm a big boy, after all - except ...