At least I have a diagnosis!

Regular readers will be familiar with my frequent complaints about poor sleep, insomnia, and general sleepiness. Well today, I finally got to do something about it.

Despite my sleep patterns being all screwed up by my epilepsy, anti-epileptic medication and the stress that comes with both, I knew myself that my sleep was far from normal. So I got a referral from my neurologist (thank you, NHS) to a sleep specialist.

I saw the guy this morning and he very quickly diagnosed “maintenance insomnia”. That is, I can fairly easily fall asleep, but regularly wake at about 1am and lie about until 3am or even 4am without sleep.

It’s not fun, I can tell you.

Despite the bad news, I was relieved. Relieved that it wasn’t all in my head and that I wasn’t making an unnecessarily big deal of it all. That said, the treatment is a course of cognitive-behavioural therapy, proven to be more effective than any medication. Sadly, there’s a three-month waiting list for this in the sleep clinic.

Sad face.

I’m on the list, but there’s nothing to stop me looking elsewhere for a similar treatment – and that’s according to the specialist I saw this morning.

So “yay!” for a diagnosis, but “boo!” for the waiting list.

  1. RedEaredRabbit May 3, 2017 at 20:16

    This is exactly what happens to me. I can fall asleep immediately at 10pm and then wake up any time between 1am and 3am. I will generally get back to sleep five mins before my alarm goes off at 6am.

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    1. It’s hell, right?

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    2. Shall we form a support group?

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  2. As the title says, it’s good to identify it finally 🙂 Hope the eventual treatment goes well for you.

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